… Seek stronger govt policies as families battle stigma, isolation, caregiver burnout By Chioma Obinna Sixteen years after sustained autism advocacy began in Nigeria, experts on Monday lamented that thousands of children and adults living with autism remain excluded from schools, workplaces and community life, blaming weak government policies, poor public support systems and persistent stigma. They warned that while public awareness of autism has improved over the years, meaningful inclusion has remained largely elusive, leaving many families to shoulder the emotional and financial burden of care without adequate institutional support. The concerns were raised at the opening of the 16th Annual GTCO Autism Conference in Lagos, where healthcare professionals, educators, parents, caregivers, policymakers and autism advocates called for urgent reforms to make schools, workplaces and public institutions more inclusive for persons living with autism and other neurodiverse conditions.
Speaking at the conference, the Group Chief Executive Officer of GTCO Plc, Mr. Segun Agbaje, said Nigeria had made significant progress in breaking the culture of silence and denial that once surrounded autism, but noted that awareness must now give way to concrete action. “Our journey over the last 16 years was to create awareness because too many families lived in denial.
I think we have largely achieved that,” he said. “The next challenge is learning how to live with people on the spectrum, educating ourselves and making the journey easier for families.” Agbaje described autism support as “a journey without a destination,” stressing that governments, schools, employers and communities all have roles to play in creating opportunities for people living with autism. He also assured participants that GTCO would continue to sustain the annual conference beyond his tenure.
Autism advocate and behavioural analyst, Mrs. Solape Azazi, said the country’s biggest challenge was no longer identifying autism but ensuring that children living with the condition are accepted and given equal opportunities to thrive. Drawing from her experience as the mother of a 12-year-old autistic son, Azazi said many parents continue to struggle with rejection, isolation, caregiver burnout and poor mental health because of societal attitudes.
It is choosing connection over correction…
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