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Patients with rare diseases are demanding that their voices be at the center of the healthcare system

World 2 sources 2 countries 🔦 Under-reported 28m ago

On September 17, Juan Carrión, president of the Spanish Federation for Rare Diseases (FEDER), advocated for the integration of patients into the healthcare decision-making process. Speaking in Seville, Carrión emphasized the necessity of placing the perspectives and needs of those suffering from rare disorders at the center of the healthcare system.

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Infobae (AR) Advocacy for patient-centered healthcare policy
Diario Libre (DO) Urban traffic management and public transit policy
Read the full story at the source Infobae (Buenos Aires, Argentina) · AR
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Covered by 2 sources